DNA From the Dead: DNA Banking is Legal, but is it Ethical? Part II

Yesterday we saw that many funeral directors offer DNA retrieval and storage as one of their services.Today, we’ll look into the WHY of DNA storage, and bring up some of the ethical questions it raises.

Why store DNA from the recently deceased?

Undoubtedly, someone who has never heard of DNA retrieval and storage will probably ask WHY we should store a dead relative’s DNA.

The reason most commonly quoted is that the DNA can be used in the future to identify inherited traits such as genetic disorders and other phenotypic characteristics.In 2006, the New England Historic Genealogical Society published an article by Edwin M. Knights, M.D. entitled “DNA Banking for Medical Information.”In the article, Dr. Knights gives a number of reasons for banking DNA from both living and deceased individuals, many of which he gleaned from the Human Genetic Society of Australasia.He states: ... Click to read more!

DNA From the Dead: DNA Banking is Legal, but is it Ethical? Part I

The field of genomics is exploding.Every day, the mysteries of our genome are revealed and we learn more and more about the power of DNA.Soon, with affordable whole-genome sequencing, we will be able to analyze our own personal genome for clues about our ancestry, our propensity for disease, and insight into our body and our personality.In fact, this is already well underway.

Undoubtedly, each of us will be faced with a decision in our lifetime – do we want to learn the secrets of our genome, or do we want to live without that knowledge, as all of our ancestors have done for millions of years.This decision is a personal one, and at this point I don’t think there’s any right or wrong answer.

But what about those who are unable to make that decision?For example, an infant is unable to give consent for genetic testing, but many states in the USroutinely test newborns for genetic disorders.Today and tomorrow we will be examining another group of individuals who are not able to consent to genetic testing – the recently deceased. ... Click to read more!

Links From The Genetic Genealogist – October 31, 2007

In order to clean out posts I’ve been saving in Google Reader (does anyone else keep posts in Reader until you’ve blogged about them?), I decided to have a potpourri day. The following are links to interesting articles around the blogosphere. And Happy Halloween!

Pedro at Public Rambling has The Fortune Cookie Genome, a ‘science fiction’ post about picking up the results of his whole genome scan from his genetic advisor. Of course, it’s only science ‘fiction’ until it’s science ‘reality’!

The Women’s Bioethic Project has an article about DNA Testing Without Consent, which asks whether there should be a ‘reverse’ statute of limitations for testing DNA from famous dead people. The article was written in response to a recent story in Parade. I talked about this briefly back in August (see “DNA From the Dead“), and I’m working on a post about “Discarded DNA and the Constitution”, so stick around. HT: Eye on DNA. ... Click to read more!