Comments on: Another Consideration For Genetic Sequencing and Privacy http://www.thegeneticgenealogist.com/2008/10/27/another-consideration-for-genetic-sequencing-and-privacy/?utm_source=rss&utm_medium=rss&utm_campaign=another-consideration-for-genetic-sequencing-and-privacy Adding DNA to the Genealogist's Toolbox Sat, 18 May 2013 19:58:25 +0000 hourly 1 http://wordpress.org/?v=3.5.1 By: RootsWeb: GENEALOGY-DNA-L [DNA] Redacted DNA Sequences http://www.thegeneticgenealogist.com/2008/10/27/another-consideration-for-genetic-sequencing-and-privacy/comment-page-1/#comment-2625 RootsWeb: GENEALOGY-DNA-L [DNA] Redacted DNA Sequences Sat, 01 Nov 2008 17:27:44 +0000 http://www.thegeneticgenealogist.com/?p=596#comment-2625 [...] etic-sequencing-and-privacy/_ (http://www.thegeneticgenealogist.com/2008/10/27/another-consideration-for-genetic-sequencing-and-pri…) I was just thinking about Blaine’s commentary on redacted genetic sequences and realizing how [...]

]]> By: Blaine Bettinger http://www.thegeneticgenealogist.com/2008/10/27/another-consideration-for-genetic-sequencing-and-privacy/comment-page-1/#comment-2588 Blaine Bettinger Thu, 30 Oct 2008 15:34:01 +0000 http://www.thegeneticgenealogist.com/?p=596#comment-2588 Great point, Dana. As a number of academics in this field have pointed out, genetic anonymity is nearly impossible. This research really supports that conclusion.

I don’t know what the answer is, other than to inform people that redaction and anonymity is almost certainly impossible. And more than just informing them on paper, I would try to ensure that they understand the possible ramifications.

]]> By: Dana Waring http://www.thegeneticgenealogist.com/2008/10/27/another-consideration-for-genetic-sequencing-and-privacy/comment-page-1/#comment-2577 Dana Waring Wed, 29 Oct 2008 14:42:44 +0000 http://www.thegeneticgenealogist.com/?p=596#comment-2577 Thank you for highlighting this very important development. I think promising subjects the ability to completely and permanently redact information they wish to keep private is not a wise approach. Informed consent protocols need to adjust, and fast, to this new reality – similar to the recent decision by NIH to pull their pooled GWAS data as researchers were able to discern individual identities. I dont know what the answer is, except that the model of ” selective redaction ” of relatively small parts of the sequence is no longer viable. Evidence is mounting quickly in this regard, and I imagine there is much more to come..

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