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Finally, GINA Gets Her Day

April 24th, 2008 in DNA in the News |

iStock_000005432570XSmall On April 27, 2007, I wrote “GINA: A Primer“, which was an introduction to the Genetic Nondiscrimination Act. Today, nearly a year later, the bill will most likely be voted on and passed by the Senate, the last step before being handed over to President Bush to sign into law (which he has indicated that he will do). As I wrote last April:

“GINA aims to protect individuals in a variety of different areas. The legislation would prohibit access to genetic information by insurance companies and would prohibit insurance companies from discriminating against an applicant based on genetic information, the refusal to submit genetic information, or for have been genetically tested in the past. Additionally, the Act would prohibit employers from using or collecting genetic information to make employment decisions. The Act also establishes a Genetic Nondiscrimination Study Commission that is charged with reviewing new developments in the field of genetics and advising Congress.”

This bill is considered by many to be an important first step in providing protections against the misuse of recent and future developments in genetic sequencing and analysis technology.

There is a great deal of information about today’s vote:

  • The New York Times – Congress Near Deal on Genetic Test Bias Bill
  • The Gene Sherpa – GINA will PASS! Thanks GTO!
  • American Society of Human Genetics – Genetic Scientists Anticipate U.S. Senate Passage of GINA (pdf)
  • CNN – Lawmakers back bill to ban genetic discrimination at work
  • GenomeWeb Daily News – Senate to Vote on GINA Tomorrow … Finally
  • Eye on DNA – GINA Nears Unanimous Consent Passage in U.S. Senate
  • Women’s Bioethics Project – Genetic nondiscrimination bill finally coming up for Senate vote
  • Genomeboy.com – A momentous hump day

There is also some very recent information from the Center for American Progress entitled “Genetic Nondiscrimination: Policy Considerations in the Age of Genetic Medicine” (full pdf report here).  The Center (which I am not familiar with) also has a recent interview with a genetic counselor: “It’s All in the Genes (Or Is It?)”

Stay tuned!

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← Genetic Genealogy, Public Databases, and Criminals
GINA: An Update →

6 Responses to “ Finally, GINA Gets Her Day ”

  1. # 1 Daily Cells - Daily Top Blog Posts on Genetics - Powered by SocialRank Says:
    April 24th, 2008 at 10:48 pm

    3.Finally, GINA Gets Her Daywww.thegeneticgenealogist.com4 commentsSocialRank On April 27, 2007, I wrote “GINA: A Primer“, which was an introduction to the Genetic Nondiscrimination Act. Today, nearly a year later, the bill will most likely be voted on and passed by

  2. # 2 Blaine Bettinger Says:
    April 24th, 2008 at 8:37 am

    Note: There is a Senate schedule here which states that H.R. 493 (GINA) will be considered after (1) morning business at 9:30, and (2) after disposition of the Veterans’ Benefits Enhancement Act (which includes up to 2 hours of debate).

  3. # 3 Discovering Biology in a Digital World : The Personal Genome discussion Says:
    April 24th, 2008 at 10:48 am

    [...] to protect people from having their genetic information against them. [Congress votes on GINA today, it will be interesting to see what [...]

  4. # 4 Genome Technology Daily Scan Says:
    April 24th, 2008 at 12:56 pm

    [...] more on GINA, check out Blaine Bettinger’s blog post about its history and coverage in the media. If all goes well for the bill, there could be much to [...]

  5. # 5 prohibit sign Says:
    May 1st, 2008 at 5:38 am

    [...] most likely be voted on and passed by the Senate, the last step before being handed over to Presihttp://www.thegeneticgenealogist.com/2008/04/24/finally-gina-gets-her-day/Scalia Says Constitution Does Not Prohibit, Permit Abortion Rights Medical News TodayWhen asked [...]

  6. # 6 News Clip Archives | ASHG Says:
    May 26th, 2008 at 6:17 pm

    [...] Washington Post – Apr 24, 2008 Here’s GINA The American Journal of Bioethics Blog – Apr 24, 2008 Finally, GINA Gets Her Day Genetic Genealogist Blog – Apr 24, 2008   We Will Celebrate DNA Day! The Open Helix Blog – Apr [...]

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